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Monday, 7 November 2016

PRE-EVENT PROMO - Enhancing Patient Experience | Ad

Enhancing Patient Experience - Professionals, Patients and Power: A Paradigm Shift in Healthcare Delivery
with Cygnet HealthCare
https://www.cygnethealth.co.uk/events/professionals-patients-power/

[Note: The programme for this event will be published in the next post]

The Positives & Negatives from my time at Cygnet 
If you're new around here (hi!) or just don't know how Cygnet came to be in my life, then you can read all about it here: http://imnotdisordered.blogspot.co.uk/2016/11/pre-event-promo-enhancing-patient.html

I'm often asked for my thoughts on Cygnet in conversations about my recovery or just my mental health journey in general. Some people will simply ask whether I liked it or not, whilst others will ask what they (Cygnet) had done to make me better. I used to struggle a lot with these questions because, like many mental health services) there were failings and I do have a lot of bad memories from being an inpatient there but I was hesitant to talk about these. I felt as though I should sing their praises because obviously, they'd played a massive part in my mental health recovery, and I didn't want to seem ungrateful. However, from the outset of I'm NOT Disordered I've always said that it would be a fair account of inpatient life in that, I would rant when I felt let-down, and I'd praise the staff when they got it right!
These are, what I believe to be, the two key areas where positives and negatives affected my time in Cygnet the most:

[above: some of my leaving presents from the girls and staff]

The People
- Living with around 15 other girls who had Borderline Personality Disorder meant that there was often rows, drama, and sometimes, even physical fights. With a big part of BPD being unstable moods and relationships, and uncontrollable anger; this should come as no surprise. Some people were on completely different stages in recovery and so, those on the verge of being discharged would have less empathy, understanding, and tolerance to those who were newly admitted and at their most unwell. One of the three main causes for arguments would be if someone disagreed with the way they'd seen another respond to staff, e.g. if they felt a member of staff was trying to be helpful but a person was being rude and ungrateful. This would also depend upon the member of staff involved, with everyone having their favourites. The second cause would be if someone self-harmed and it impacted on others e.g. once someone returned from Home Leave and cut themselves very badly, telling others that they'd used a knife they had brought in from home; when it became apparent that the person had passed the knife on to another girl nobody would admit who now had it, so everyone's bedrooms were searched. And the third main cause for an argument would be if it was felt that another's behaviour had upset or 'triggered' others, e.g. when a girl needed to be tube-fed, some felt that it reminded them of their own eating disorder battles and now had to battle resisting the urge to fall back into that routine.
+ I met some incredible people! My Named Nurse, Dr A and Chelsea to name but a few. I loved that the staff didn't hold grudges like those I'd previously experienced; if you'd had an 'incident' with them one day, they would treat you no differently come their next shift. With Bowling ward being long-term; on the day I was discharged there was still girls there who'd been there on my admission day! And so, it would've been hard not to make friends. I can still remember all of their names and I still think about them; wondering where they are now, if things have gotten better, if they're still on their medication or self-harming the way they did on the Ward. I also still think about Dr A and keep in touch with my Named Nurse who became a second Mother to me and even travelled up to Newcastle to attend my 100k party!



The Place
- A huge difficulty in being on the ward was the changes. It is widely known that those with BPD don't cope well with change; especially if they experience one of the symptoms of BPD: abandonment issues. Once, a girl made the comment that she used to work at Tesco but that this Hospital had a higher turnover in staff. One of the two biggest negative affects this had, was that with every new senior member of staff, came a new set of ward rules. Bowling ward had a number of different Ward Managers during the time I was a patient there, and they would often attend a Morning Meeting (having never met anyone) and announce all of their changes to the rules, and be met with a lot of anger and most often; "you've been here five minutes!" Over time, a rule change might become massively beneficial and make the ward a better place, and then a new Manager would come, spend a day in their office, and then tell those who were there 24/7 what needed changing.
+ Although hard at first, the structure became very beneficial. It would prevent me from lying in bed all day, feeling miserable, and planning new ways to self-harm or escape. It also helped to make me feel good about myself when I felt I'd been productive. A huge influence on my behaviours was that they now had consequences. In the community, of course there was consequences to self-harm - dressings, A&E, needles, stitches, treatment... But gradually, they no longer affected me enough to make me change and stop those behaviours. And of course, being over 18, no one could stop me from doing so. However, being sectioned under the Mental Health Act and needing permission to put one foot outside the main doors, provided me with enough motivation to try harder to resist the thoughts of self-harm. Even sleeping through the groups on your timetable meant consequences too; such as refusing said leave!


Coming up next on I'm NOT Disordered; I'll be posting all of the links you need to keep up to date with the event...
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Sunday, 6 November 2016

PRE-EVENT PROMO - Enhancing Patient Experience | Ad

Enhancing Patient Experience - Professionals, Patients and Power: A Paradigm Shift in Healthcare Delivery
with Cygnet HealthCare
https://www.cygnethealth.co.uk/events/professionals-patients-power/

[Note: Due to unforeseen circumstances the programme for this event is currently not available for publishing]

How Cygnet became involved in my life
If you're new around here (Hi!); then you may not know the circumstances in which I'm NOT Disordered came about...
It was because of Cygnet Healthcare
After three years (2009-2012) of self-harm, hallucinations, suicide attempts and hospitalisations (both Psychiatric and Medical), a Doctor suggested my Care Team look into a long-term Hospital that specialised in Personality Disorders (I was diagnosed with Borderline Personality Disorder in 2010). My CPN found that the nearest of such Hospitals to where I lived (Northumberland) were The Retreat York and Cygnet Hospital Bierley; and I agreed to have assessments with the staff of each because I was convinced that I'd have committed suicide by the time things were actually being planned.

Ironically, as it turned out; it was the fact that I almost succeeded in committing suicide that caused me to be admitted to Cygnet. I remember waking up in ICU, finally off life-support, and my upset Mum was telling me I needed to go.
To actually be admitted involved a lot of meetings (that I had no involvement in!) to have funding approved (Cygnet is a private healthcare provider); a process that would usually take months, but after leaving ICU on the Thursday, I was in Cygnet; and detained under section 3 of the Mental Health Act (1983) by the following Tuesday.
The ward I was on was specialised in Borderline Personality Disorder; which meant two things:
1. All of the other girls/ladies/service users/patients (everyone prefers different titles) had the same diagnosis and therefore, some similar (or the same, according to the DSM) 'symptoms.' When you consider that key features in BPD are unstable moods and relationships, and uncontrollable anger; you can pretty much guess what the negative repercussions and consequences of this might be.
2. The ward 'rules' were centred around what professionals had come to perceive as the best response and treatment for those with BPD.

Life at Cygnet, was a timetable...
You had to choose so many groups (I can't remember the exact number) to do during the weekday; I remember that I picked Arts and Crafts and Reading, and then I'm pretty sure I chose some sort of sports/walking group because there was rarely enough staff to organise the walks, and my many physical problems meant I wasn't allowed to do the sports! I think there was some kind of personal project one where we got time upstairs at the computers...
Then there was the groups that were automatically compulsory (!): group Dialectical Behaviour Therapy, 1:1 DBT sessions, DBT Review group, psychology sessions (although they were not part of everyone's treatment plan), a kind of support group around Self-Harm, and Morning Meeting (where we each had to say how our night had gone and how we were feeling then; and the opportunity to raise any issues to all of the staff who attended) and Reflection; which after tea at about 6pm (?) and, as its name suggests, we each had to say how our day had gone and how we felt then.

And it was on one random evening in January 2013 that I returned to my room after a 1:1 with my Named Nurse (one of the greatest ladies I have ever known), looked at my laptop on the hospital bed; and decided that I wanted to type out everything we had just talked about and everything that I was thinking and feeling in that very moment. I have no idea why I set up a blog rather than use Word, but maybe that's just another sign that I'm NOT Disordered was meant to be. And why I was meant to be a Blogger.


Coming up next on I'm NOT Disordered; I'll be talking about the positives and negatives from being in Cygnet; including around the timetable structure...
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Friday, 6 May 2016

24hrs with a Cygnet Healthcare Involvement Co-ordinator

24 hours with... Adam Stewart
Date: 27/04/16
Why have you chosen to write about today? 
I chose to write about today because it’s the service user awards today and it’s such a fun and different day, I felt it was a perfect choice for this.



Good morning!
Good morning indeed!

What time did you wake up?
At 05:00 this morning unfortunately.

Why did you wake up at that time?
I was meant to get up at 06:00 but it was earlier to a phone call about a question of the service user awards.

Did you have a dream? 
Not that I remember, I was wish I could remember my dreams more,

Do you think today will be 'good' or 'bad' day? (use your own definition of these words to answer the question)
Both I think, it will great in terms of what happens during the day but it will be bad in a sense because it’s a long day and there’s a lot to do, but as I say fun and totally worth it.

What are the first three things you do after waking up?
Debate how much longer I can get away with staying in bed, check my phone (bank balance, social media), and have a shower (wake myself up a bit)

Do you eat breakfast? If yes, what did you have?
I don’t often eat breakfast, I usually try and stay in bed as long as possible, but today I had a cooked breakfast as it was included in the hotel price (crispy bacon and poached eggs for sure).

What would be your perfect breakfast?
Eggs benedict (bacon not ham) with some mango juice.

Is there anything that you have to do today but don't particularly want to?
3 and a half hour drive home after the service user awards.

List five things that you do between 9am and noon.
Set up my display stand for the service user work done at the hospitals in West Yorkshire where I work, chat and greet guests as they arrived at the awards, did a lot of walking around Silverstone race circuit, sit in Aston Martin and Ferrari at the entrance to the awards and supported service users during the service user awards.

Did you eat lunch? If yes, what did you eat?
I had a tasty lasagne and salad with miniature desserts.

What would be your perfect lunch?
Oooo that’s tough, I do enjoy a Nando’s steak wrap with halloumi cheese, nom nom.

List five things that you have done, said, thought, or that have happened between noon and 5pm.
Chatted to some lovely people, heard some amazing musical performances, celebrated with service users as they won an award at the service user awards, sat in an Aston Martin and Ferrari and packed away my display stand.

Do you eat dinner/tea? If yes, at what time?
Had my dinner at 18:00 today.

What do you eat?
I had Korean chicken noodles and a steak and ale pie with triple fried chips and gravy.

What would be your perfect dinner?
Spaghetti Bolognese, that’s my fave meal.

What do you do with your evening (5-8pm)?
I had my dinner and set off travelling back from Silverstone, not my usual evening, usually would involve a shower, dinner and watching television or playing Xbox.

Do you have a 'get-ready-for-bed' routine? If so, what is it?
Usually it would be watch something animated and comedic, such as Family Guy or American Dad for the last hour before I sleep.

What time do you go to sleep?
Normally I would go to bed between 00:00 and 01:00, though today I was gone for just after 11:00, it was a long day.

Is this when you want to go to bed? Or is it influenced by what you're doing the following day?
Today it was, especially knowing I had a long day ahead of my tomorrow, but a fun one nevertheless.

Do you share your bed?
I do, I share it with my partner and sometimes the family dog haha.

Which position do you tend to sleep in? e.g. foetus, starfish etc.
Usually it’s the foetal position, I always sleep on my side and have a pillow between my legs to help with back (it aches a lot).


Reflect
What was your favourite part of your day?
Being at the service user awards, it was a lot of fun and inspiring.

What was your least favourite?
The long drive home.

Did anything happen today that you'd like to change or re-do?
Probably get a flashier bow tie for next year perhaps.

Did you 'learn' anything today? (use your own definition of this word to answer the question)
I learned that, despite the struggles that people may endure in life (whatever that may be), there is always the potential for something amazing to be done, anyone has the power to make a difference.

Are you looking forward to tomorrow?
Absolutely yes!

What do you have planned? 
I have work in the morning and then after that I am going to a Captain America Movie Marathon! Get to see Captain America: The First Avenger, Avengers Assemble, Captain America: The Winter Soldier, Avengers: Age of Ultron and Captain America: Civil War in one glorious 13 hour sitting at the cinema with some of my friends. I can’t wait #TeamIronMan.
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Tuesday, 15 March 2016

International Women's Day in North Tyneside pt 2 | 'Ad'

Welcome to post number two of the International Women's Day event at which Time To Change commissioned me to assume the role of Social Media and Evaluation Manager.
Here's post one: http://imnotdisordered.blogspot.co.uk/2016/03/international-women-day-in-north.html

A lot of different organisations attended the event; providing lots of information and insight through stalls, speeches and Q&A sessions.


The Angelou Centre
I'd heard of this amazing organisation through a website that advertises voluntary jobs and so I had a rough idea of the work they do- or at least I thought I did! As I usually work at events centred around mental health, it was really interesting to find out about such a different kind of organisation yet realise there was still a psychological element to their work. The centre's website describes the service as a 'black-led women's centre' who 'offer a range of holistic women only services for Black and Minority Ethnic women.' When the staff who attended the event spoke, they concentrated on the work they do around Female Genital Mutilation (FGM), which is procedures that intentionally causes injury to the female genital organs. One of the Centre's main service in this area, is in aiding women to get counselling or psychological support because many of the women who go to the Centre don't know how to access such services, and the workers aid in ensuring any counsellors or therapists are capable of supporting these women after such a unique and specific trauma.

For more information:
http://angelou-centre.org.uk
0191 226 0394
admin@angelou-centre.org.uk
http://www.nhs.uk/conditions/female-genital-mutilation/Pages/Introduction.aspx


Time To Change
I've obviously worked with Time To Change on many occasions and so I'm very aware of their purpose and work, but I really enjoyed listening to the workshop that the Equalities and North East Regional Coordinator, Angela Slater led. It was centred around stigma (the focus of Time To Change)  and asked the group what they thought 'stigma' was; it's always so interesting to hear each individual's understanding on such terms.
'Belief.' 'Lack of understanding.' 'Judgement.' 'Discrimination.' 'Pre conceptions.' 'Stereo type.' 'Opinion.' 'Something negative.' 'Label on someone.' 'A difference.'
The group were then asked what kind of affect they thought stigma could have on a person.
'Upset.' 'Angry.' 'Withdrawn - lacking in confidence.' 'Suicidal.' 'Ashamed.' 'Isolated.' 'Uncomfortable.' 'Substance abuse.' 'Job prospects/opportunities.' 'Defeated.' 'Vulnerable.' 'Depressed.' 'Anxious.'
And finally, the group were asked to think of ways in which mental health stigma can be challenged.
'Challenge words like "schizo."' Send get well cards and messages. The same as you would do for physical health.' 'Listen to people.' 'Text or call.' 'Don't judge.' 'Don't make assumptions.' 'Pro-active in removing negative thoughts.' 'Go and see someone to just talk.'

For more information:
http://www.time-to-change.org.uk
020 8215 2356
info@time-to-change.org.uk


Samaritans
I think that one of the most popular bits of advice for those struggling with their mental health is to call a helpline. Some of you may have noticed that I've never recommended any helplines; this is because I've only ever used just one myself so I'd feel that it'd be unfair for me to only recommend that one when there may be many others that people have found helpful but I've never accessed them. If you haven't already guessed, the helpline I used was Samaritans. The worker speaking about the services they offer, mentioned that they hoped they'd made a difference to people and I realised that they probably never found out whether they had helped those who call, so I took the opportunity to tell them that they'd helped me. I'd found them useful in that they didn't ask millions of questions. They didn't want my entire life story. And for much of the call, it was actually silent. And that helped. To know someone was there. I called with a handful of tablets, and when I hung up they were all flushed down the toilet!
I think that a crucial part in the support Samaritans provide is in their confidentiality promise. You don't have to give your name, date of birth, address... Nothing. And they will never inform other services of your call; it's not traceable.

For more information:
http://www.samaritans.org
116 123
jo@samaritans.org
Text: 07725909090
Tyneside offices: 15 Portland Terrace, Jesmond, Newcastle, NE2 1QQ
0191 232 7272
Twitter: @tynesidesams

The Big Lottery Fund
This is probably one organisation most of you will be familiar with, they've funded large projects such as Time To Change and Gateshead Millenium Bridge (for those living in my region). Learning about the processes that someone has to go through in order to not only qualify but apply for a grant and funding from The Big Lottery Fund, has meant I feel better educated in something that is often questioned and been quite controversial in the media. Only the most positive and inspirational projects, who will have life-changing impacts on others, are awarded the financial support that can be crucial in making their dreams and potential come to life. The projects funded by the Lottery fund save lives.
The Fund Representatives said: we've really enjoyed International Women's Day. Lovely people and good networking. Sharing thoughts and experiences with a variety of organisations. Thank you - Linda & Maria

For more information:
https://www.biglotteryfund.org.uk
0345 4102030
general.enquiries@biglotteryfund.org.uk


Happy Planet Creative Arts
This project was an individual's brain-child; Gail Curry. Gail experienced the loss of her partner and a home burglary that left her feeling unsafe in her own home, within three months of one another. Understandably, she developed Depression, an Anxiety Disorder, and PTSD; and has spent the last two years learning to manage herself as a person with such mental health problems. Upon realising her experience was a 'journey' that had led her to this very event, she decided to use maps to craft Origami cranes from to represent everyone's personal journey; whether they're centred around mental health or not. The traditional Japanese art of Origami- in particular cranes- give promise of eternal good fortune and recovery from illness. Gail's intentions in this project, were for people to write a message of hope/peace/recovery that when strung together and displayed, others may learn from one another's journey.

For more information:
www.happyplanetcreativearts.org.uk
https://www.facebook.com/happyplanetcreativearts/
07752356880

To watch the VLOG of this event: https://youtu.be/bQzHQOagUvc
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Friday, 24 April 2015

Youth Speak Event | 'Ad'

So I'm currently working on a very exciting project with ITV Fixers (which will remain top secret until further notice) and so one of the girls from there was invited to this event by Youth Speaks. Unfortunately, she couldn't make it, so she asked if I could pop along.



So, the event was held in the Middlesbrough Institute of Modern Art (MIMA)...
















The group who attended were a massive variety of professionals from so many different sectors and young people from different groups and universities with different motivations for being there. I met a guy from Durham University paper, another who photographing, a lady from a local dance group... It was good to have such a diverse group as it meant a more balanced view, result and opinions.













The first exercise was for everyone to be given a white mask and then to go around the room asking one another a set of questions. They then took the masks off and did the same. Afterwards, they were asked if there'd been any differences. I think the point of the exercise was to see if people answered more honestly when they were able to hide behind a mask.
We then watched a film about various social experiments such as two groups of girls being shown two different 'dating videos' where the man says the same things but one is more upbeat and the other is downbeat. Each group had a completely different opinion even though the same things were said! One group thought the guys was self-centred and the other thought he was 'cute' and 'honest.' There was another clip where two guys looked alike and dressed alike but one was shorter and without even speaking, people assumed that the shorter guy earned a lot less money than the tall man who they thought was a millionaire Doctor or Lawyer. There was also one where a businessman fell and people rushed to help him and a homeless man fell and people just walked around him.
The groups then had to think of their own social experiments. One group came up with the idea of strangers meeting someone and asking their opinions on the person, and then being told something about them and seeing how their opinions changed. For example telling them that one person suffered from panic attacks, one self-harmed or another heard voices. I found this idea really amazing because I've watched the change in people's facial expressions, body language and attitude when I tell them that I have mental health problems and hallucinations and that I self-harm.




When we broke for food, the journalist from Durham Uni and I interviewed the lady from the local dance group, and the NHS person who had funded the event. It was incredibly interesting speaking with her (I think her name was Chris?)as we talked about young people who are involved in these events having the ability to shape the way services are ran. And I found the confidence to express that there is contrasting thoughts to this with some thinking that these events occur but then no changes are actually made. I told her of how I was sent 200 miles from home because there were no specialist PD Services and now that's improving.


After food, we watched the new film put together to explain a bit about Youth Speaks, the way it was set up, the benefits it provides to the young people and how they came to be involved. They talked about the progress that the organisation made from beginning in a quite formal manner before soon learning that it was best to engage with young people in a more informal and relaxed manner. All of the young people then stood and said a little piece about their experience of working with Youth Speaks. 
Finally, everyone was given a banana (yes; you read that right!) on which to write the best piece of advice they've been given. They then went outside to take a group photo and lots of banana selfies! 





To watch the video of the event:
https://www.youtube.com/watch?v=916srX9zc0w

To read my personal post:
http://imnotdisordered.blogspot.co.uk/2015/04/im-not-disordered-does-middlesbrough.html

To watch my vlog of this day:
https://www.youtube.com/watch?v=tpUW1gUkeUM

For more info on Youth Speaks: 
http://www.youthspeakmh.com/
https://www.dur.ac.uk/school.health/mhrc/youthspeak
https://twitter.com/YouthSpeakMH

For more info on the venue:
http://www.visitmima.com/

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Thursday, 6 March 2014

From My Diary...

[note: this post contains discussion of self-harm behaviours and suicidal ideation]


It's been brought to my attention that it's been a while since I last published a day-to-day kind of post. I guess a lot has been going on and I haven't really known how to write it up... I've decided to just copy it from my diary.
28.02.2014,23:26
I was ok when my CPN left then every now and again it'd come into my head that that's it. But I pushed it out because I'm worried it'll hurt too much if I let myself feel it. I'll have to wait until the staff get me tomorrow. A rabbit just darted past! Got such a shock!
28.02.2014, 23:56
I'm worried. I remember once when I was in Hospital and I refused to see my Psychologist. She left me a note and it was really horrible. Later on, I looked at it again and I said something different, I think that's what's happening now; The Simpsons and my books all seem to be part of their plan.
01.03.2014, 23:43
It's amazing how suicidal I get when I'm this tired! All day I've felt like my brain wouldn't rest even for a second - it was going 100mph! So I didn't have my afternoon nap or sleep on the way back. I'm shattered. I was worried in the hairdressers today. I kept imagining me trying to make a run for it and Mum flattening me. And then there were rabbits. I told myself to just stay safe and that I could take my PRN once the staff got me. And when they were running late, I panicked that I couldn't keep smiling until then. But then it was two of my favourite staff who got me and I told myself to just have a laugh with them to get back safely and without taking meds. Once I was back, the sadness started creeping back though but I kept myself busy and let myself take Zopiclone so I could finally get some rest.
02.03.2014, 18:22
I am so tired and sad. I just want to curl up and be left alone. Sick of how much effort it takes to breath sometimes - not in a suicidal way. Just.... tired.
02.03.2014, 19:33
Didn't think I would ever stop crying! It suddenly got hard to stay here. In this hospital. In this year. I think that what I wrote for College has confused my mind. It was all so real and I got quite lost in my writing. I think that's where it started to go wrong. And then my Named Nurse tried to pass me off onto agency so it got worse. They speak to me about fighting what I'm being told from the voices but then the staff do these things and they give them more ammunition and I have to fight even harder. Because the staff who should be helping me, have made my battle even harder. I know I have to put effort in to get better but sometimes I'd rather sleep.
02.03.2014, 20:42
Those Lorazepam were just what my head needed. It's as though I didn't even realise how loud it was getting in there until there's silence. I feel calm and sleepy.
03.03.2014, 22:55
Glad I went to College even though the Doctor wasn't too sure. It ended up being a good distraction. The beginning was a bit hard because one of them had wrote about school and it got to me because I wasn't prepared for it or in control of it. Ended up cheering me up but as time goes by and I get more tired, I'm drifting away again. Sleep time!
04.03.2014, 13:12
I think I feel better. But part of me thinks I'm only better in so far as I can pretend to be happy now. Yesterday, I was too sad to pretend. When I was waiting for meds this morning the clinic door was left open and I looked to see no one was watching. I imagined myself crawling in, grabbing the box of paracetamol and going to my room. I hate those really impulsive ideas. It's so much harder to consider the consequences than it is when voices are telling me to.
04.03.2014, 22:50
Henry is in his element with all of these strange, random bruises that keep turning up. I feel like there's no one here for me now. Like, my first Named Nurse has gone, Chelsea has gone and my new Named Nurse clearly isn't going to be any good as a Named Nurse - she's far too busy to have any idea what's going on for me. Everyone is. All the staff are stressing and rushed off their feet. I feel so left-out and alone. I know what people mean about staff changing when you're well. It's like no one puts any effort in to you. This spurs Annie on though; saying I need to test if they still care. I just keep telling her that they've proven it enough times these past two years. I don't want to overdose just so I can say 'oh yes; they do still care.'
05.03.2014, 14:06
Last night everything got loud and strange. I got given Lorazepam but I cried for ages at feeling so alone and not wanting to self-harm etc. It would've been so much easier if I'd just wanted to do what they were saying. An NA checked my bedroom for rabbits and the Nurse stayed with my until the meds had kicked in. Today, I had to leave self-esteem group and a Charge Nurse gave me two more Lorazepam. I pushed myself to go to Creative Writing but then suddenly I was anxious and suspicious. The air vents looked different - as though they were doing another job. And then I felt like I'd be trapped in here because when the government come to take me and Henry there'll be nothing anyone can do about it. You can't say no to the government.
05.03.2014, 19:26
I'm tired but my head is finally peaceful. The Psychologist was back in today but she didn't even bother to apologise and re-arrange. Makes me want to say 'forget it.' I just want to be discharged now. I'm going to push for everything next Ward Round.
05.03.2014, 20:09
Just needed another catheter. Luckily there was an NA in who could do it so it saved me an A&E trip. I felt even more lonely after that so I went into the sitting room and sat with the girls listening to an NAs hilarious stories. It was nice to be included.
05.03.2014, 21:43
My concentration has gone to shit. I literally can't watch something for longer than 30mins. I'm managing to do other things though like word searches, colouring-in and reading.
05.03.2014, 22:06
I miss him. I have to speak to him. Wondering if I could just ring and ask to speak with him. I just want to hear his voice. Oh God. I want him back. How could he do this to me? Deny that WE ever happened? It hurts. My heard hurts.
06.03.2014, 09:02
So, apparently I didn't hand my laptop in last night. The staff said they talked about it and will let me off because it's unlike me and they know how much I struggled yesterday. The thing is Henry says I did hand it in and that the staff are conspiring with the government and have planted something on the laptop so I'm terrified to turn it on... I can just imagine turning it on and MI5 come into my room. About 20% of me knows I can be forgetful when I have Lorazepam but that's not enough to fight Henry, so I took PRN Quetiapine. The Ward Manager took me into her office, I thought it would be about the evidence, but it wasn't. She said I've been really subdued and sad and that she's barely seen me. She checked she hadn't done anything wrong then asked how she could help. I started crying because I just wanted to say 'make it quieter and take away the pain.' But she can't.


I was feeling quite hopeless about how quickly things seemed to have gotten so bad but now I'm looking at these past few days, remembering how hard they were, and I'm proud of myself. I'm getting through it without self-harm. And even though I'm not 100% sure it's passed, I am confident that I won't self-harm because of it and I think that's a massive achievement. I'm using DBT skills now, to cope. I'm distracting myself, talking to staff, using PRN... And I know that it'll end eventually.
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Wednesday, 2 October 2013

The Long 1:1 And A Prank

At lunchtime I was telling my best-friend how we weren't going to the Hearing Voices group in the nearby city and that I was worried this meant the Ward Doctor would be wanting to see me. After lunch, we were waiting to go to group when she came along and asked why I wasn't at the group. Once I told her she said 'oh! That means we can talk?' My friend burst out laughing so we agreed on 2pm and I went upstairs to group to read my book (a book review will follow in good time) and then after, I hoped the Doctor would've forgotten about the 1:1 but at 2pm on the dot she was knocking on my door! We ended up chatting for an hour and a quarter about so much! We talked about the voices and my mood. We talked about my 'trauma' too. I've always said that what happened was more complicated than people realised but the 1:1 made me realise it was even more complicated than I had realised. She spoke to me about how the 'trauma' made me feel and explained that when the 'trauma' happened I lost a lot... Not just faith and trust in people of authority...
She also made me understand the blame game and that I was blaming myself for the entire thing because no one else was taking any blame. She asked how I knew that the other person involved in the 'trauma' wasn't taking any and I said as long as they weren't in prison or dead they weren't. She tried proving all of my 'negative beliefs' wrong and we talked a bit about hope because she said I appeared to have lost quite a lot of it. And she tried saying that they needed to help me make peace with my past and I said that I'd made peace with my future and the idea that I would end up dead. She asked how I could be at peace with something like that. I explained how everyone has the natural instinct to survive and so at first, I would overdose or self-harm and I'd get help or I'd stop the bleeding. But slowly, I programmed myself not to react in that way. When I was admitted to this Hospital I got my survival instinct back and now I'm losing it again. . . She asked how I could do that and I told her that every time I start to doubt my plan or feel happy, I remind myself of all the pain and badness. She told me that the new Psychologist will be starting next week and that they'll be rushing me through to see them.
After the 1:1, I felt very tired! It was actually physically draining to have worked so hard mentally! For the first time though, I had a bit of hope again. I always had this reluctance to believe that talking about the 'trauma' would make a difference. I always said that I'd talked about it and felt no different. But today made me see, that talking about it could help. Because the more I talk and the more I realise more about it, the more I can understand it. And if you can't understand something then you can't deal with it or accept it.
Finally, to cheer us all up, two of us played a prank on the staff... We ran round the ward with signs we'd made for all of the doors... The ward door had one on reading 'warning: may contain nuts,' the quiet room said 'the padded cell,' the activity room said 'let the games begin,' the security cupboard became 'staff's chocolate cupboard,' the staff office was 'the zoo,' the meeting room (where ward round is held) became 'the torture chamber, warning: Doctors roam free,' our Ward Manager's office was 'God's office,' the kitchen; 'may contain sugar,' and the bathroom was 'shit shed warning: may smell,' the laundry room said 'may contain stained sheets.' They were up for about two hours before staff removed them! We all got a well-deserved laugh though!
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Friday, 19 July 2013

I Got To Go On The OT Trip

Since I first started this blog, I've always vowed to post the good, the bad and the ugly. And this post is the good...
I was lying in bed in our half an hour break between Morning Meeting and first group and dreading the beginning of 'Feel Good Friday' when one of the staff came into my room asking why I was in bed when I'd asked her to sign me out. I had no idea what she meant. Then one of the OT staff came to my room with my sign-out sheet telling me that he'd been told by staff that I could go on the trip to a nearby city centre (therapy leave on 15minute obs has to be discussed and agreed on by staff). I couldn't believe it, I jumped out of bed (wearing black leggings, a black top and oversized jumper) put my boots on and grabbed a bag then signed out. As I got to the ward door one of the staff pointed at me and my stomach fell through when I suddenly panicked he was going to either change his mind or say he hadn't realised I was on 15 minute obs but he just pointed at me and said 'behave, trouble.' I was so excited as we walked to the bus stop at the bottom of the road the Hospital is on and I called my Mum to tell her the good news! We (6 patients, 3 from my ward, 3 from the low secure ward upstairs and 4 staff) got the bus straight through to the city centre. The three of us on my ward all had bus passes to get on for free and our passes get a 'carer' on for free too so we all buddied up with the 3 others to get them on for free so that only the staff had to pay. We went to a few shops and I was absolutely boiling so I bought a skirt, shoes and sunglasses from the New Look sale and changed in their changing rooms. Then we went to a few more shops before finding a pizza place beneath a cinema. It was so embarrassing when the staff said we had 10 people and the waitresses started pushing all these tables together; I'd sort of imagined that us patients would sit at one and the staff would sit at another. But no, I ended up sat in between a girl from my ward and one male NA with the three other staff opposite us. Cosy! It was actually nice though. We all had a laugh and the food was yummy!

We went to a few more shops before finally getting the wrong bus back; we ended up having to go to the town centre where the Hospital is near and then getting another bus back to the Hospital.
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Wednesday, 10 July 2013

My Obs Stayed The Same

My last Ward Round the plan was to change my obs four days later and let me go on Home Leave that weekend. Did it happen? Did it fuck! (excuse the language in this post but I'm pretty damn furious!)
I've now had two nurses telling me I should be on 30minute obs so on Monday I fully expected my obs to be changed in zoning. But they didn't do zoning. They didn't do it yesterday either. Today, I had my hopes up. But the staff just told me they didn't change them. I couldn't believe it!
These past two weeks, I've stopped eating for four days, I've started hearing a new voice, I've had my first tactile hallucination and I've been let-down numerous times by staff making promises they couldn't be bothered to keep. My point is, I've had all this shit and I've not self-harmed. The lectures and support with the eating wasn't helping so I gave myself a stern talking to and put a stop to it myself. With the voice, I went straight to a nurse about it. With the tactile hallucination, it made me question a lot and my trust in staff wavered but it lasted days and I took the first step in speaking to staff about it. And when I've been let-down, I haven't lost my temper or mouthed off at staff; I've gone to my room, cried and ranted to friends. I've also had this massive sadness inside of me; it swells up and feels like there's a cloud above me and that everything is grey and bleak. I've barely managed to enjoy anything I've done and there've been times when all I've wanted is to feel some pain to stop from feeling all of this sadness. But I haven't. I've used DBT (Dialectical Behaviour Therapy) skills and grounding techniques. Even today, when I was struggling so badly with the voices that I went for PRN but before the Nurse could get me some a doctor took me into a room and quizzed me things. While she was talking I found myself scratching furiously at me left arm to the point where I drew blood. She stopped me and said we needed to stop talking so that I could get meds. I told her I felt like I could manage it myself now but she was adamant and was convinced I was going to go to my room and self-harm. I refused the medication, went to my room, scratched my arm a bit more, cried then lay on the cold bathroom floor and took some deep breaths. After about half an hour, I went for my dinner and took my usual 6pm meds. I was so proud of myself but all of this effort feels completely wasted when the staff aren't even acknowledging it. Instead, they've told me today that everyone is concerned about me because I usually attend and participate in all my groups but yesterday they said I didn't go to groups (they were in the sun in the courtyard all day and I had a migraine) and that I didn't participate in any today. It's like nothing I do is good enough. It makes me wonder why I don't just self-harm or do what the voices say. It makes me wonder why I bother. The staff are quick enough to punish you when you self-harm or don't co-operate but you put a bit of effort in and work hard and it takes them a bloody month to even realise!

Luckily, it's Ward Round again tomorrow so I still have the chance of changing my obs and getting my Home Leave this weekend but it hurts that I have to persuade them to change my obs and beg and plead. And I don't know how I'm going to cope if they still say no.

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Thursday, 25 April 2013

I Have To Make Some Decisions...

[note: this post contains discussion of suicidal ideation]

This morning while I was getting ready I started making plans. I didn't mean to. My head was noisy... To the point where I couldn't tell the difference between their voices and my thoughts. They all became one. So I started planning my escape route to run off when I had my unescorted ground leave to go and overdose. I didn't want to do it. Yet I was making the plans. I was thinking about how I'd gotten away with it two times already so I might as well go the same way. I was worrying I'd get caught before I got in the taxi and it would all be a waste. And then I realised; I didn't want to do it. I felt sick with the thought of all the tablets I'd have to swallow before the voices went quiet. I felt shivery at the thought of the horrible anti-dote I'd end up having when they found me. Because they always found me. So what was the point? Were the voices  that bad? Did I really need to do it? I went and spoke to one of the staff and told her I shouldn't be allowed out today. She asked why and I explained then she told me it was 'really brave' of me. "Or stupid!" She shook her head and promised to support me if the voices started getting nasty at me for speaking to staff. Then I went to group. Just like that. At first, my smile was easy to rub off as the voices went on, and on. But then I got more determined and began to feel like a weight had been lifted at the thought that I wouldn't have to overdose today. It was such a relief. I'd never felt like this before; I mean, it wasn't often I stopped myself from overdosing but when I had done I'd always regretted it and ended up doing it the next day because my head had gotten so loud.

[note: As I'm talking a lot about the voices, I thought I should describe them to you. There are three; Albert, Annie and Harry and I know it sounds strange that they have names and I know it sounds crazy that I hear voices no one else can but it's not so mad. The explanation I have for them is that as I disassociated during my 'trauma' I am now disassociating by hearing them and having visual hallucinations. The best way to describe them is like headphones. When you listen to your music through your headphones and the sound is going in through your ears yet it somehow fills up your head. Each voice has it's own personality; Albert is the one who tells me what to do, Annie is the one who comes up with the sneaky parts of the plans and Harry is just some random, excitable child who loves the adventure of an overdose. They are inside of me but they're not part of me. Don't feel bad if you still can't  comprehend this; it took me about two years to grasp.]

I sat through one of my groups and when things got louder I reminded myself I'd be taking my anti-psychotic in an hour anyway so there was no need to ask for meds. I managed. And I'll do it again and again for as long as I can.
I'm still happy with my decision to tell staff and I need to keep reminding myself of this feeling because I can still feel plans building up for tomorrow so I might have to stay in then too. But it'll all be worth it in the end if it means I get to live my life.
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Wednesday, 27 March 2013

I Got Through Nana's Anniversary

Yesterday was the one year anniversary of my Nana's death so I knew it would be a tough day... I wasn't wrong.
In the morning, I distracted myself by offering to do the cooking in Brunch group so I cooked the bacon, sausage and egg and it was nice to keep busy but once I was done, I sat in the multi-purpose room on the OT department (where people were eating their brunch) and the voices were really loud. I asked staff to take me back down to the ward and I went and sat on my bed. The next thing I knew the rabbits (visual hallucinations) were trying to jump on me with their muddy paws. I held in my scream and ran into the shower... In my clothes. I stood there for a few minutes before I thought 'hang on! This isn't right' so I pressed my patient call and a Nurse came in and helped me stand (I was sitting under the shower) and wrapped me in a towel before my Key Nurse appeared and asked what had happened. She rubbed my hair with the towel and it was lovely; sometimes all you need is to be mothered. Some staff refuse to give hugs categorically because it's 'unprofessional' but others (and I think this is the right way to go about it) believe that in some situations, when the patient is really distressed, then a hug can do the trick... Or at least help a little bit. She reminded me they couldn't see the rabbits and when I said they'd gone, she talked me through that they weren't real and it was just an hallucination then she sent the other Nurse to get me some meds. They gave me a Lorazepam (very mild sedative) and my anti-psychotic then I had a proper shower, because I still felt dirty from the rabbits. I tried to go into my next group of Arts and Crafts but I couldn't focus so I went back to my room.
I cried from frustration at the intensity and volume of the voices and in my rage, I stotted my head off my bathroom floor (leaving a lovely graze/bruise on my forehead) and then went to bed for the rest of the day (missing lunch and my last two groups after lunchtime).

When I got up I thanked my Key Nurse for letting me sleep and she told me they know now that sometimes that's best for me and I told her that even if they'd tried to make me go to groups I'd rather risk losing my leave so I could sleep because when I'm tired I struggle even more because I don't have the energy to fight.
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